No one wants to be on this side of grief. No one wants to be told their child is going to die. No one wants to live in this hell, but the truth is, a lot of people do. This is the story told through my experiences, after my child was diagnosed with pontocerebellar hypoplasia (PCH). This is my story telling of trying to live, when you know your child will die. This is about overcoming odds, living in the moment, and never giving up.